Transition from child-centered to adult health-care systems for adolescents with chronic conditions, Journal of Adolescent Health, vol.14, issue.7, pp.570-576, 1993. ,
DOI : 10.1016/1054-139X(93)90143-D
Congenital adrenal hyperplasia, The Lancet, vol.365, issue.9477, pp.2125-2136, 2005. ,
DOI : 10.1016/S0140-6736(05)66736-0
Management of adolescents with congenital adrenal hyperplasia, The Lancet Diabetes & Endocrinology, vol.1, issue.4, pp.341-352 ,
DOI : 10.1016/S2213-8587(13)70138-4
Congenital adrenal hyperplasia ? how to improve the transition from adolescence to adult life. Experimental Clinical Endocrinology and Diabetes, pp.343-355, 2004. ,
Congenital adrenal hyperplasia in adults: a review of medical, surgical and psychological issues, Clinical Endocrinology, vol.23, issue.1, pp.2-11, 2006. ,
DOI : 10.1210/jc.2002-021074
Determining clinical and biological indicators for health outcomes in adult patients with childhood onset of congenital adrenal hyperplasia, European Journal of Endocrinology, vol.173, issue.2, pp.173-175 ,
DOI : 10.1530/EJE-14-0978
Health Status of Adults with Congenital Adrenal Hyperplasia: A Cohort Study of 203 Patients, The Journal of Clinical Endocrinology & Metabolism, vol.95, issue.11, pp.5110-5121, 2010. ,
DOI : 10.1210/jc.2010-0917
Clinical Characteristics of a Cohort of 244 Patients with Congenital Adrenal Hyperplasia, The Journal of Clinical Endocrinology & Metabolism, vol.97, issue.12, pp.97-4429, 1210. ,
DOI : 10.1210/jc.2012-2102
Increased Cardiovascular and Metabolic Morbidity in Patients With 21-Hydroxylase Deficiency: A Swedish Population-Based National Cohort Study, The Journal of Clinical Endocrinology & Metabolism, vol.100, issue.9, pp.3520-3528, 1210. ,
DOI : 10.1210/JC.2015-2093
Clinical Outcome, Hormonal Status, Gonadotrope Axis, and Testicular Function in 219 Adult Men Born With Classic 21-Hydroxylase Deficiency. A French National Survey, The Journal of Clinical Endocrinology & Metabolism, vol.100, issue.6, pp.2303-2313, 2015. ,
DOI : 10.1210/jc.2014-4124
URL : https://academic.oup.com/jcem/article-pdf/100/6/2303/10422312/jcem2303.pdf
Guidelines for the development of comprehensive care centers for congenital adrenal hyperplasia: guidance from the CARES foundation initiative, International Journal of Pediatric Endocrinology, 1687. ,
The challenge of delivering endocrine care and impact of transition on adult service on quality of life in patients with congenital adrenal hyperplasia: experience in a single centre over 18 years, Clinical Endocrinology, vol.2013, pp.78-101 ,
Quality of life in adults with congenital adrenal hyperplasia relates to glucocorticoid treatment, adiposity and insulin resistance: United Kingdom Congenital adrenal Hyperplasia Adult Study Executive (CaHASE), European Journal of Endocrinology, vol.168, issue.6, pp.887-893, 2013. ,
DOI : 10.1530/EJE-13-0128
Long-term outcome of classical 21-hydroxylase deficiency: diagnosis, complications and quality of life, Acta Paediatrica, vol.45, issue.2, pp.183-187, 2000. ,
DOI : 10.1111/j.1651-2227.2000.tb01213.x
Quality of life is less impaired in adults with congenital adrenal hyperplasia because of 21-hydroxylase deficiency than in patients with primary adrenal insufficiency, Clinical Endocrinology, vol.86, issue.Suppl 1, pp.166-173, 2011. ,
DOI : 10.1210/jc.86.10.4686
French adult population norms for the physical health, psychological health and social relationship dimensions. Revue d'Épidémiologie et de Santé Publique, pp.33-39, 2010. ,
Determinants of Medical Care for Young Women with Turner Syndrome, The Journal of Clinical Endocrinology & Metabolism, vol.94, issue.9, pp.3408-3413, 2009. ,
DOI : 10.1210/jc.2009-0495
The quality of life in adult female patients with congenital adrenal hyperplasia: A comprehensive study of the impact of genital malformations and chronic disease on female patients life, European Journal of Pediatrics, vol.316, issue.9, pp.708-716, 1995. ,
DOI : 10.1016/S0197-2456(05)80015-7
United Kingdom congenital adrenal hyperplasia adult study executive (CaHASE): relationship between adult height and health outcomes in adults with congenital adrenal hyperplasia: United Kingdom congenital adrenal hyperplasia adult study executive (CaHASE), Journal of Clinical Endocrinology and Metabolism, vol.2014, pp.99-1547 ,
Quality of life in 70 women with disorders of sex development, European Journal of Endocrinology, vol.155, issue.6, pp.877-885, 2006. ,
DOI : 10.1530/eje.1.02294
Subjective health status in men and women with congenital adrenal hyperplasia: a population-based survey in Norway, European Journal of Endocrinology, vol.163, issue.3, pp.453-459, 2010. ,
DOI : 10.1530/EJE-10-0284
Type of Mutation and Surgical Procedure Affect Long-Term Quality of Life for Women with Congenital Adrenal Hyperplasia, The Journal of Clinical Endocrinology & Metabolism, vol.93, issue.2, pp.380-386, 1210. ,
DOI : 10.1210/jc.2007-0556
Transition from Pediatric to Adult Healthcare: Assessment of Specific Needs of Patients with Chronic Endocrine Conditions, Hormone Research in Paediatrics, vol.78, issue.4, pp.78-247 ,
DOI : 10.1159/000343818